Rare Diseases
What This Page Covers
This page collects the 10 public records POLISCOPE has tagged with “Rare Diseases”. Coverage spans bills and news coverage - each decoded into plain English and linked to its primary source. It most often overlaps with Healthcare, Medical Research, and Healthcare Policy.
Active Bills
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Key Actors
- 01Food and Drug Administrationorganization2 mentions
- 02Secretaryorganization1 mentions
- 03Padillaperson1 mentions
- 04Schmittperson1 mentions
- 05n-Lorem Foundationorganization1 mentions
- 06United States Food and Drug Administrationorganization1 mentions
- 07Department of Managed Health Careorganization1 mentions
- 08Carlsbadlocation1 mentions
- 09Hawleyperson1 mentions
- 10IntraBio, Inc.organization1 mentions
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- Topic to billsCalifornia requires health plans to approve rare disease drug requests within 30 days, Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026, Genomic Answers for Children’s Health Act of 2026 (+1 more)
- Topic to peoplePadilla, Schmitt, Hawley
- Topic to orgsFood and Drug Administration, Secretary, n-Lorem Foundation (+3 more)
Source Trail
Documents whose extracted record lists this topic. Each item opens the Bill Dossier, which includes the official source URL when available.
- Aug 30, 2026State BillCalifornia requires health plans to approve rare disease drug requests within 30 days
- Aug 11, 2026Newsn-Lorem Foundation and BioMarin Pharmaceutical partner to develop ReNU syndrome treatment
- Apr 6, 2026Federal BillAccelerating Access to Critical Therapies for ALS Reauthorization Act of 2026
- Jan 15, 2026Federal BillGenomic Answers for Children’s Health Act of 2026
- May 23, 2024Federal BillPromising Pathway Act 2.0: New Conditional Approval Process for Rare Disease Drugs
- Jan 1, 2020hearing transcriptSenate Hearing: Speeding Up Treatments for Rare Diseases
Showing 6 of 10 source records.