The civic record
Read. Follow. Verify.Childhood Cancer Clinical Trials Act
Record date · December 17, 2024
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What This Bill Would Do
This bill requires health insurance plans to cover out-of-network costs for children with rare diseases participating in approved clinical trials. It also expands Medicare coverage to include consultation and referral services for patients in certain clinical trials.
If passed, this bill would ensure that families of children with rare diseases do not face higher out-of-pocket costs when seeking specialized care at out-of-network facilities for approved clinical trials, effective January 1, 2024.
Who It Would Affect
Groups the bill's text would affect if enacted, as described in the record. Being affected is not a position for or against it.
Qualified individuals with rare pediatric diseases
They gain access to out-of-network coverage for routine clinical trial costs at in-network cost-sharing rates.
Group health plans and health insurance issuers
They are required to provide out-of-network coverage for specific clinical trial services and adjust reimbursement structures.
Medicare beneficiaries
They gain coverage for consultation and referral services when participating in category A clinical trials.
Key Facts
You don't have to trust us. Each fact below is taken straight from the official document - click any one to see the exact passage, highlighted in the original.
Frequently Asked Questions
Does this bill apply to my private health insurance?
What costs are covered for out-of-network clinical trials?
What else do you want to know?
News Coverage
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Votes, people, money & the original sourceWhere This Stands
Currently filed. The next step in the legislative lifecycle is Committee.
Version history
Only one version on file - nothing to compare yet. As later stages (committee substitute, engrossed, enrolled) are captured, the redline appears here.
View official text →Full breakdown
Who this bill affects and the strongest case for and against it, written only from the bill’s own text.
Discoveries
Patterns POLISCOPE noticed across the record. These are observations to investigate, not conclusions.
Expansion of Clinical Trial Coverage
The bill shifts the burden of out-of-network costs for rare pediatric disease trials from the patient to the insurance provider, aligning with broader efforts to increase clinical trial participation.
Sources
www.congress.gov
Analysis Score
0–100- Significance75How much this matters to a regular citizen
- Controversy20Intensity of disagreement among stakeholders
- Entertainment5Compellingness for a non-policy-wonk reader
- Buzz30Current news / social attention level
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