Proposed Neurofibromatosis Research Grant Program

The Frame

What this does

The bill establishes a dedicated $5 million annual funding stream for neurofibromatosis research, which would directly impact the availability of state-supported grants for Florida-based universities and research institutes.

Who is mentioned in the record

Potentially affected actors named in the source documents. Mention is not a position.

Florida universities and research institutes

These entities are eligible to apply for and receive research funding under the proposed program.

Rare Disease Advisory Council

The council is required to consult on grant awards and consider priority scores from peer review panels.

Department of Health

The department is tasked with administering the grant program, appointing peer review panels, and awarding grants.

What changed

Last recorded activity March 13, 2026.

What's next

Introduced.

Summary

This bill would create a state-funded grant program within the Florida Department of Health to support scientific and clinical research into neurofibromatosis. If funded, the program would provide $5 million annually for research projects selected through a competitive, peer-reviewed process.

Key Facts

You don't have to trust us. Each fact below is taken straight from the official document - click any one to see the exact passage, highlighted in the original.

Frequently Asked Questions

Who can apply for these research grants?

Any university or established research institute located in Florida is eligible to apply.

How will the state decide which research projects get funding?

The Department of Health will use a competitive, peer-reviewed process where independent experts score applications based on scientific merit, which are then reviewed by the Rare Disease Advisory Council.

What happens if the grant money isn't spent in the first year?

If funds are obligated by contract by June 30 of the fiscal year, they can be for up to 5 years.

Why It Matters

The bill establishes a dedicated $5 million annual funding stream for neurofibromatosis research, which would directly impact the availability of state-supported grants for Florida-based universities and research institutes.

News Coverage

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Discoveries

Patterns POLISCOPE noticed across the record. These are observations to investigate, not conclusions.

policy shift90% confidence

Formalization of Rare Disease Research Funding

The bill attempts to move from ad-hoc research funding to a structured, competitive, and peer-reviewed grant program specifically for neurofibromatosis.

Department of Health Rare Disease Advisory Council