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High Impact

North Carolina Bill Appropriates Funds to Expand Sickle Cell Programs and Medical Center Services

Original title: Expand Sickle Cell Disease Programs & Svcs.

Last action · April 2, 2025: Ref to the Com on Appropriations, if favorable, Rules, Calendar, and Operations of the House (House action)Sponsors: Terry Brown and 20 others

Introduced
Committee
Floor Vote
Passed
Law

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What This Bill Would Do

House Bill 633 appropriates millions in recurring and for the 2025-2027 fiscal biennium to the Department of Health and Human Services, Division of Public Health, to expand statewide sickle cell disease programs, medical center care, transition coordination, and community grants beginning July 1, 2025.

Why it matters

Increases state financial support for medical care, support services, and personnel dedicated to the approximately 7,000 North Carolinians currently living with sickle cell disease.

Who It Would Affect

Groups the bill's text would affect if enacted, as described in the record. Being affected is not a position for or against it.

Directly affected

Individuals with sickle cell disease

Individuals with sickle cell disease experience expanded statewide medical center services, transition coordination for adult care, and enhanced emergency department care.

Directly affected

Comprehensive sickle cell medical centers

Comprehensive sickle cell medical centers receive annual funding allocations and are required to establish a full-time permanent Transition Coordinator position.

Directly affected

Community-based nonprofit organizations

Community-based nonprofit organizations are eligible to receive directed grants to provide comprehensive services in underserved counties.

Directly affected

Department of Health and Human Services, Division of Public Health

The Department of Health and Human Services, Division of Public Health, administers the appropriated funds, awards nonprofit grants, and supports program operations.

Key Facts

  • Appropriates $1,678,400 in recurring funds and $629,873 in nonrecurring funds for the 2025-2026 fiscal year, and $1,678,400 in recurring funds and $613,250 in nonrecurring funds for the 2026-2027 fiscal year.
  • Allocates $1,316,364 in recurring funds each year of the biennium to six comprehensive sickle cell medical centers for multifaceted needs and transition assistance.
  • Distributes medical center funds annually as follows: Atrium Health ($203,713), Duke University Medical Center ($244,999), East Carolina University School of Medicine ($235,536), Mission Hospitals ($137,601), UNC Chapel Hill School of Medicine ($281,031), and Wake Forest University Baptist Medical Center ($213,484).
  • Requires each comprehensive medical center to use $75,000 of its allocation in recurring funds each year to create one full-time, permanent Transition Coordinator position.
Show all 9 facts
  • Allocates $353,250 in nonrecurring funds each year for directed grants to nonprofit, community-based organizations prioritizing underserved counties.
  • Allocates $362,036 in recurring funds annually to create new permanent positions for the North Carolina Sickle Cell Syndrome Program.
  • Allocates $16,623 in nonrecurring funds for the 2025-2026 fiscal year to purchase office equipment and furniture for new program positions.
  • Allocates $260,000 in nonrecurring funds each year to disseminate and implement an evidence-based sickle cell disease toolkit in emergency departments.
  • Establishes an effective date of July 1, 2025.

Frequently Asked Questions

How much total funding does HB 633 provide?
The bill appropriates $1,678,400 in and $629,873 in for 2025-2026, and $1,678,400 in recurring funds and $613,250 in nonrecurring funds for 2026-2027.
Which medical centers receive annual funding under this measure?
Atrium Health, Duke University Medical Center, East Carolina University School of Medicine, Mission Hospitals, The University of North Carolina at Chapel Hill School of Medicine, and Wake Forest University Baptist Medical Center.
What is the purpose of the Transition Coordinator positions?
Each comprehensive medical center must use $75,000 of its to create a full-time, permanent position to conduct transition readiness assessments and coordinate care for individuals moving from pediatric to adult care.
How are community-based organizations selected for grants?
The Department of Health and Human Services, Division of Public Health, prioritizes nonprofit corporations that provide a comprehensive array of services in counties lacking these services.

What else do you want to know?

News Coverage

No news coverage found yet. Articles are indexed twice daily.

Where This Stands

Currently in committee. The next step in the legislative lifecycle is Floor Vote.

Procedural history

3 actions
  1. Apr 2, 2025House
    Ref to the Com on Appropriations, if favorable, Rules, Calendar, and Operations of the House
  2. Apr 2, 2025House
    Passed 1st Reading
  3. Mar 31, 2025HouseIntroduced
    Filed

Version history

Only one version on file - nothing to compare yet. As later stages (committee substitute, engrossed, enrolled) are captured, the redline appears here.

View official text →

Lobbying Activity

No state lobbying filings in our records match this bill. Federal lobbying reports (LDA) cover Congress, so they are not listed on state bills.

Full breakdown

Who this bill affects and the strongest case for and against it, written only from the bill’s own text.

Sponsors

Discoveries

1 pattern noticed across the record

Patterns POLISCOPE noticed across the record. These are observations to investigate, not conclusions.

policy shift95% confidence

Targeted Care Transition Funding

The bill mandates dedicated funding for Transition Coordinator positions at every designated medical center to formalize support for patients moving from pediatric to adult care.

Connected Entities

The University of North Carolina at Chapel Hill School of Medicine, Women, Infant and Community Wellness Section, Wake Forest University Baptist Medical Center and 8 more
OrganizationThe University of North Carolina at Chapel Hill School of Medicine“Comprehensive sickle cell medical center receiving annual funds”Map →
OrganizationWomen, Infant and Community Wellness Section“Section within the Division of Public Health supporting program operations”Map →
OrganizationWake Forest University Baptist Medical Center“Comprehensive sickle cell medical center receiving annual funds”Map →
OrganizationCenters for Disease Control and Prevention“Federal agency funding sickle cell data collection”Map →
OrganizationDepartment of Health and Human Services, Division of Public Health“Recipient of appropriated funds to expand sickle cell programs”Map →
OrganizationNorth Carolina Registry and Surveillance System for Hemoglobinopathies“Prior surveillance system funded by the CDC”Map →
OrganizationNorth Carolina Sickle Cell Data Collection Program“Program funded by the CDC that estimates sickle cell disease numbers”Map →
OrganizationMission Hospitals“Comprehensive sickle cell medical center receiving annual funds”Map →
OrganizationEast Carolina University School of Medicine“Comprehensive sickle cell medical center receiving annual funds”Map →
OrganizationDuke University Medical Center“Comprehensive sickle cell medical center receiving annual funds”Map →
OrganizationAtrium Health“Comprehensive sickle cell medical center receiving annual funds”Map →

Sources

Analysis Score

0–100
  • Significance75
    How much this matters to a regular citizen
  • Controversy15
    Intensity of disagreement among stakeholders
  • Entertainment5
    Compellingness for a non-policy-wonk reader
  • Buzz35
    Current news / social attention level

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