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HR6790FEDERALFederal Billfiled

New Era of Preventing End-Stage Kidney Disease Act

Record date · December 17, 2024

Bill progressHistory & official text ↓
Introduced
Committee
Floor Vote
Passed
Law

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What This Bill Would Do

This bill proposes new federal funding and research initiatives to improve the prevention, diagnosis, and treatment of rare kidney diseases. It establishes research centers, mandates a federal study on diagnostic testing and care access, and expands medical training programs for kidney specialists.

Why it matters

If passed, this bill would authorize $35 million in total federal spending over five years to create specialized research centers and study how to improve kidney disease outcomes for patients in rural and underserved communities.

Background
  • The Public Health Service Act is a foundational federal law that governs many aspects of the U.S. public health system, including the National Institutes of Health. context

Who It Would Affect

Groups the bill's text would affect if enacted, as described in the record. Being affected is not a position for or against it.

Directly affected

Rare kidney disease patients

The bill mandates research into their condition and aims to improve diagnostic and treatment methods.

Directly affected

Nephrology fellows

The bill creates new fellowship opportunities focused on rare kidney disease and minority health.

Directly affected

Rural and underserved communities

The bill prioritizes outreach and education regarding kidney disease diagnosis and prevention in these areas.

Key Facts

You don't have to trust us. Each fact below is taken straight from the official document - click any one to see the exact passage, highlighted in the original.

Frequently Asked Questions

What are the NIDDK Centers of Excellence?
These are regional research centers established to study the causes, symptoms, and treatments of rare kidney diseases and to increase public awareness in underserved communities.
Does this bill affect how doctors are trained?
Yes, it amends the Public Health Service Act to include rare kidney disease in primary care training and creates new nephrology fellowships focused on rare disease and minority health.
How will this bill impact patients with disabilities?
The bill explicitly prohibits the use of cost-effectiveness metrics like QALYs or DALYs in research, which the text notes are mechanisms that can discriminate against individuals with disabilities.

What else do you want to know?

News Coverage

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Where This Stands

Currently filed. The next step in the legislative lifecycle is Committee.

Version history

Only one version on file - nothing to compare yet. As later stages (committee substitute, engrossed, enrolled) are captured, the redline appears here.

View official text →

Lobbying Activity

2359 STRATEGIES

on behalf of Travere Therapeutics

2025

MEDICARE/MEDICAIDHEALTH ISSUESMEDICAL/DISEASE RESEARCH/CLINICAL LABSPHARMACY

“H.R.1518 - New Era of Preventing End-Stage Kidney Disease Act”

Senate LDAMatched on title words onlyView filing on LDA.gov →

Full breakdown

Who this bill affects and the strongest case for and against it, written only from the bill’s own text.

Connected Entities

Mr. Bilirakis, Administrator of the Health Resources and Services Administration, 42 U.S.C. 1395 et seq. and 26 more
PersonMr. Bilirakis“Introduced the bill along with Ms. Sewell.”Map →
PersonAdministrator of the Health Resources and Services Administration“Secretary shall coordinate with the Administrator of the Health Resources and Se”Map →
other42 U.S.C. 1395 et seq.“Medicare program under title XVIII of the Social Security Act (42 U.S.C. 1395 et”Map →
OrganizationMedicaid program“the Medicaid program under title XIX of such Act (42 U.S.C. 1396 et seq.)”Map →
date2024“Start of fiscal years for which appropriations are authorized.”Map →
other42 U.S.C. 1396 et seq.“Medicaid program under title XIX of such Act (42 U.S.C. 1396 et seq.)”Map →
dateDecember 14, 2023“Date the bill was introduced.”Map →
other42 U.S.C. 293k(b)(3)(E)“Section 747(b)(3)(E) of the Public Health Service Act (42 U.S.C. 293k(b)(3)(E)) ”Map →
other42 U.S.C. 1395rr(f)“Section 1881(f) of the Social Security Act (42 U.S.C. 1395rr(f)) is amended”Map →
otherSocial Security Act“Medicare program under title XVIII of the Social Security Act (42 U.S.C. 1395 et”Map →
dollar amount$6,000,000“Authorization of appropriations for fiscal years 2024 through 2028.”Map →
OrganizationHouse Ways and Means Committee“Committee to which the bill was referred.”Map →
dollar amount$1,000,000“authorized to be appropriated $1,000,000 for each of fiscal years 2024 through 2”Map →
OrganizationHouse Energy and Commerce Committee“Committee to which the bill was referred.”Map →
PersonDirector of the Center for Medicare and Medicaid Innovation“Secretary shall coordinate with the Director of the Center for Medicare and Medi”Map →
OrganizationNational Institute of Diabetes and Digestive and Kidney Diseases“Institute where Centers of Excellence will be established.”Map →
other42 U.S.C. 293“Section 736(b) of the Public Health Service Act (42 U.S.C. 293) is amended”Map →
PersonSecretary“shall conduct a study on testing, preventative care, precision medicine, and tre”Map →
OrganizationFood and Drug Administration“Will coordinate with the Institute on rare kidney disease activities.”Map →
OrganizationMedicare program“treatment patterns associated with providing care, under the Medicare program un”Map →
bill numberNew Era of Preventing End-Stage Kidney Disease Act“date of the enactment of the New Era of Preventing End-Stage Kidney Disease Act”Map →
OrganizationNational Institutes of Health“Oversees policies for cooperative agreements and grants.”Map →
bill numberH.R. 6790“Bill number introduced in the House of Representatives.”Map →
PersonDirector of NIH“Secretary shall coordinate with the Director of NIH”Map →
PersonAdministrator of the Center for Medicare & Medicaid Services“Secretary shall coordinate with the Administrator of the Center for Medicare & M”Map →
PersonMs. Sewell“Introduced the bill along with Mr. Bilirakis.”Map →
otherAPOL1 gene“advances in genetic and genomic testing, and in particular testing of the APOL1 ”Map →
otherPublic Health Service Act“Act to be amended by this bill.”Map →
date2028“End of fiscal years for which appropriations are authorized.”Map →

Sources

Open source document

www.congress.gov

Analysis Score

0–100
  • Significance65
    How much this matters to a regular citizen
  • Controversy10
    Intensity of disagreement among stakeholders
  • Entertainment5
    Compellingness for a non-policy-wonk reader
  • Buzz20
    Current news / social attention level

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